14.00 - 16.00
CLINICAL RESEARCH
ASSOCIATES/ TRIAL
NURSES
The Mission
The mission of the clinical research team is to contribute to the advancement of treatment for childhood cancer as well as the integrity of the research itself.
The CRC/TN play an essential role in the conduct of clinical research and are crucial in assuring that the scientific accuracy of data is of highest quality.
Conference Room 1
Agenda of this meeting:
• Personal presentation of each attending CRA/TN
• Presentation of the study center structure, organization in each country and open studies (HR-NBL, Lines, Beacon, Veritas, OMS-DES 2011, NB-SCI, RIST, MIITOP, TOTEM) (Please prepare a quick and short presentation, two slides)
• Comparison and discussion on differences between countries
• Discussion about the creation of a SIOPEN network group of CRC/TN
• Presentation of the HR2 NBL database
• Open questions
• Organization of future educational sessions and training: subjects of needs and interest.
14.00 - 15.00
14:00 – 14:10
14:10 – 14:20
14:20 – 14:30
14:30 – 14:40
14:40 – 14:50
14:50 – 15:00
QOL- LTO COMMITTEE
Introduction Committee Activities
Ototoxicity in Neuroblastoma
Outline of the Ototoxicity Study &
Spanish Pilot
Audiometry and QoL issues
Genetic Testing
Discussion, Prospective
Conference Room 2
15.00 - 16.00
15:00-15:05
15:05-15:20
15:20-15:40
15:40-16:00
JOINT QOL- LTO – PALLIATIVE CARE
Introduction
SIOPE Palliative Care Working Group
How can SIOPEN include Palliative Care on
its activities?
Discussion
Conference Room 2
16.30 – 17.00
16.30 – 16.45
16.45 – 17.00
JOINT QOL- LTO – NUCLEAR MEDICINE
Single center study of thyroid protection
Discussion
Conference Room 2
17.00 – 18.00
17:00 -17:20
17:20 -18:00
JOINT NUCLEAR MEDICINE RADIOLOGY
Hybrid imaging in HR-NB.
Discussion about:
- Local control: Definition of MRI/MIBG/F-DOPA value in the HR NBL
- Additional value of MIBG/F-DOPA and PET-MRI in metastatic disease
Conference Room 2